DIAGNOSIS
Your doctor will ask about your health history, as well as any signs and symptoms you’re experiencing. They might ask about:
- Do you have any blood in your urine?
- What medications are you now taking?
- Have you experienced any symptoms of blood clots?
- Have you ever experienced stomach or digestive issues?
- Have you had your blood tested for bone marrow disorder or aplastic anemia?
Moreover, you will be subjected to routine blood tests. Your doctor may test your iron levels or collect samples of your bone marrow. They’ll also use other tests to look for blood clot symptoms if you have them.
TREATMENT
Paroxysmal nocturnal hemoglobinuria treatments aim to reduce symptoms and prevent consequences. Your treatment will be based on the degree of your symptoms and condition.
If you simply have a few anemia signs, you may need:
- Iron supplements
- Folic acid
- Ravulizumab
- Eculizumab
- Pegcetacoplan
Treatment options include:
- Blood transfusions
- Blood thinners
- Bone marrow stem cell transplant
Doctors typically only provide a bone marrow transplant to young persons with acute PNH due to considerable health risks. Discuss the dangers and benefits with your doctor if you believe it will help you.